Who lives in the U.K, has a spare £1.00 & Wishes to be a good friend!?

Wow that is heartbreaking. So THAT was the funeral you said you were going too. My condolences to the entire family.

It is heart breaking however, its another day without pain is how I see it, the whole thing about JH is they taught both the boys everything and brought happiness to everyone around them. All families with children with a small life expectancy where I live would be lost, JH is like a family ( well, that careers there) and I hope it can stay open for another year as its not Gov funded.


And yes, you was right, I didn't want to go to far on the datail, but today its all been done, now I just want to try and help JH and get the EB cure sorted! Thanks for reading though bro,Il catch you on the mountain some day aha.

Can Americans donate? I'd be glad to.

StrawberryGL wrote:

Can Americans donate? I'd be glad to.

Anyone around the world can, Its just people in the U.K have probably seen the news a lot faster!

However, thank-you very much for taking 5 mins to read and willing to donate! Chips'

Wow man. I know how you must feel. Really something else loosing a family member. Specially some 1 close.

My heart goes out to you, Chips, truly.

I'll be donating later on tonight when I have a reliable internet connection.

Wow. I am so sorry to hear this happen. If I had any money I would donate. My heart goes out to you and your entire family.

Hey everyone and thank you all very much! It's not all about the donating, although, I can promise you, just a small £1.00 or something literally can bring an ill child's life happiness, you will make parents have a few hours to there self, they can go out and do things that are ever so easy for a normal family to do.

For example, as Harry and Cody both had breathing problems, they would have to live life breathing through a little hole in there throat, every time you put one off the kids in a pram to go shopping, they would get stressed and they are strapped in, but, as the oppertuninty being able to visit JH, it lead to my sister & Chris to be able to go food shopping, go walk in the country side, and the best part was, Harry & Cody could be at JH, playing with other children, learning to use their hand's, learning to do sign language, learning to do things that any normal child can do.

My sister, she had a still birth with two little girls, she then had Harry and then, she had Cody, each year, we set a list off things we would LOVE the boys to do.... Bear in mind if you really look into it, neither can speak, walk OR use their fingers as they were badly blistered, this year, Harry took his first ever steps, they both some how healed there finger and toes to be able to feed one another, they could sign to one another and the most touching part, what they learnt at JH, the boys then tough us, the most incredible thing in the world, is a boy teaching you, without speaking..... Sign language, Note, Steph has never heard the word ' Mummy ' from any off her children.

Anyway, as I said, it's not about the money, I just hope I can make you all aware of EB and trying to help those who like to donate to look into a charity that I would recommend 100%.

Thanks everyone! P.S if you see a child being abused by there parents, or them bitching about '' my kid wont stop talking, they wont stop running away ' and all this, Slap them in the face and let them know how fortunate they are.

Sorry to hear. Makes me feel sorry since i have a kid of my own.